Showing posts with label Rett Syndrome. Show all posts
Showing posts with label Rett Syndrome. Show all posts

Thursday, June 16, 2011

Karly Speaks About Rett Syndrome and the Importance of Hydration

My friend Karly who has Rett Syndrome has just posted on her blog about having Rett Syndrome and The Importance of Hydration. Most girls and women who have Rett Syndrome often have breathing issues and do a lot of hyperventilating. Karly also battles with seizures constantly. In this blog post, she talks about how she is including more fluids into her diet daily. The outcome has lifted her spirits and she is feeling great. Please visit her blog Inspired By Love.


- Posted using BlogPress from my iPad


Thursday, June 3, 2010

Karly Wahlin Finds Her Voice Through Music | Rett Syndrome

I can't believe I have know this young woman for almost 15 years. I worked with Lois (Karly's mom) for seven years at Wilder Forest and became close friends during that time. Karly was diagnosed with RET Syndrome many years ago. It has been a long hard road for their family. Karly is 24 years old now and continues to live in the loving care of her mother and step-father. Despite her diagnosis, Karly has found a way to communicate with a keyboard. She shares her story through poetry, her blog, public speaking events and through composing her own music. They are stong folks, and I just wanted to share their story with everyone. Recently Karly was on the evening news. I finally got to see it. If you click below, you'll connect to the Fox News story.
Karly Wahlin Finds Her Voice Through Music | Rett Syndrome